GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research

By S. Staniszewska, J. Brett, Iveta Simera, K. Seers, C. Mockford, S. Goodlad, D. Altman, D. Moher, R. Barber, S. Denegri and 6 more. British medical journal, 2017

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GRIPP2 (short form and long form) is the first international guidance for reporting of patient and public involvement in health and social care research. This paper describes the development of the GRIPP2 reporting checklists, which aim to improve the quality, transparency, and consistency of the international patient and public involvement (PPI) evidence base, to ensure that PPI practice is based on the best evidence Background While the patient and public involvement (PPI) evidence base has expanded over the past decade, the quality of reporting within papers is often inconsistent, limiting our understanding of how it works, in what context, for whom, and why. Objective To develop international consensus on the key items to report to enhance the quality, transparency, and consistency of the PPI evidence base. To collaboratively involve patients as research partners at all stages in the development of GRIPP2. Methods The EQUATOR method for developing reporting guidelines was used. The original GRIPP (Guidance for Reporting Involvement of Patients and the Public) checklist was revised, based on updated systematic review evidence. A three round Delphi survey was used to develop consensus on items to be included in the guideline. A subsequent face-to-face meeting produced agreement on items not reaching consensus during the Delphi process. Results 143 participants agreed to participate in round one, with an 86% (123/143) response for round two and a 78% (112/143) response for round three. The Delphi survey identified the need for long form (LF) and short form (SF) versions. GRIPP2-LF includes 34 items on aims, definitions, concepts and theory, methods, stages and nature of involvement, context, capture or measurement of impact, outcomes, economic assessment, and reflections and is suitable for studies where the main focus is PPI. GRIPP2-SF includes five items on aims, methods, results, outcomes, and critical perspective and is suitable for studies where PPI is a secondary focus. Conclusions GRIPP2-LF and GRIPP2-SF represent the first international evidence based, consensus informed guidance for reporting patient and public involvement in research. Both versions of GRIPP2 aim to improve the quality, transparency, and consistency of the international PPI evidence base, to ensure PPI practice is based on the best evidence. In order to encourage its wide dissemination this article is freely accessible on The BMJ and Research Involvement and Engagement journal websites.

Subfields: General Health Professions, Organizational Behavior and Human Resource Management, Sociology and Political Science

View Paper: https://www.semanticscholar.org/paper/74172100f082204e56aa7791cb15a48730259330

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Citations in the corpus

Guidelines for Inclusion of Patient-Reported Outcomes in Clinical Trial Protocols: The SPIRIT-PRO Extension (2018, background): “When patients have actively contributed to this process, this should be documented as per recent guidance for the reporting of patient and public involvement.(21)”
Research co-design in health: a rapid overview of reviews (2020, methodology): “Some reporting standards have been developed, for example, the use of the Guidance for Reporting Involvement of Patients and Public checklist [46, 47].”
TRIPOD+AI statement: updated guidance for reporting clinical prediction models that use regression or machine learning methods (2024, background): “…advancements, considerations of fairness, 62 wider acceptance of open science practices, 63 and public and patient involvement in research and implementation of research, 64 65 an update to the TRIPOD 2015 statement is needed to capture these developments and the consequences for reporting.”