Which terms should be used to describe autism? Perspectives from the UK autism community

By Lorcan Kenny, C. Hattersley, B. Molins, C. Buckley, Carol Povey, Elizabeth Pellicano. Autism, 2016

1,672 citations recorded by the source corpus.

Subfields: Clinical Psychology, Cognitive Neuroscience, Occupational Therapy

View Paper: https://www.semanticscholar.org/paper/15892f1a3599fdaa2fa6dc6a5f2611753dc20395

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In Clinical Psychology

In Cognitive Neuroscience

In Occupational Therapy

Citations in the corpus

Prevalence of co-occurring mental health diagnoses in the autism population: a systematic review and meta-analysis. (2019, methodology): “reported: (1) CMHCs not confirmed with DSM/ICD criteria; (2) lifetime diagnoses of CMHCs,”
Excluded from school: Autistic students’ experiences of school exclusion and subsequent re-integration into school (2017, neutral): “…is, however, often a mismatch between cognitive ability and day-to-day functional skills for those on the autism spectrum with at least average IQ (Klin et al., 2007) and so we refer to this sample as cognitively or intellectually able, in lieu of the widely used, but nevertheless misleading,…”
Improving research about us, with us: a draft framework for inclusive autism research (2017, background): “Decisions as to which terms to use when referring to autistic individuals (or should it be persons with autism?) are always difficult and nuanced (Kenny et al. 2016).”
Social Identity, Self-Esteem, and Mental Health in Autism (2017, positive): “Notes 1In the current study, we refer to individuals with autism as “autistic people”, as this was a term endorsed by 61% of 502 autistic people in a recent study, compared to 18% who would use “person with autism” (Kenny et al., 2016).”
Autistic girls and school exclusion: Perspectives of students and their parents (2017, methodology): “In this article, we use both identity-first language (i.e. autistic boys and girls) as well as person-first language (i.e. boys and girls on the autism spectrum) to respect this diversity of views (see Kenny et al., 2016).”
"Autism is me": an investigation of how autistic individuals make sense of autism and stigma (2020, background): “It should be noted that in line with the preference of autistic people, this article uses identity first language (autistic individual), instead of person-first language (Kapp et al. 2013; Kenny et al. 2016).”
Making the future together: Shaping autism research through meaningful participation (2018, neutral): “The number of autistic-led organisations, publications (e.g. Autonomy; Beardon, 2017; Lawson et al., 2017; Murray, 2005), online communities (e.g. wrongplanet.net) and events (e.g. Autistic Pride, Autreat and Autscape) is a testament to the energy and dedication of this community.”