Methods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information material.

By E. S. Nilsen, H. T. Myrhaug, M. Johansen, Sandy Oliver, Andrew D. Oxman. Cochrane Database of Systematic Reviews, 2006

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Patient engagement in research: a systematic review (2014, background): “[8] reported that engaging patients in the research process may lead to an output (report) that is more readable and understandable by other patients.”
Family-Centered Care: Current Applications and Future Directions in Pediatric Health Care (2011, unknown): “involvement results in relevant information gain [72].”