Health-information altruists--a potentially critical resource.

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Privacy-Preserving Generative Deep Neural Networks Support Clinical Data Sharing (2017, background): “Numerous linkage and membership inference attacks on both biomedical datasets [6-13] and from machine learning models [14-16] have demonstrated the ability to re-identify participants or reveal participation in a study.”
Using electronic health records to drive discovery in disease genomics (2011, background): “Multiple studies have documented public willingness to participate in (and obtain personally relevant results) from genomic researc”
The Personal Genome Project (2005, unknown): “…relatives too) would not be hesitant about knowing and sharing ANY part of the subject’s genome or Personal Health Records (Sands and Halamka, 2004; Kohane and Altman, 2005), as whatever makes that part scary to them could make some other part scary at a later date (after it is too late to remove…”