How and why patients made Long Covid
By Felicity Callard, Elisa Perego. Social Science & Medicine (1967), 2020
759 citations recorded by the source corpus.
Patients collectively made Long Covid – and cognate term ‘Long-haul Covid’ – in the first months of the pandemic. Patients, many with initially ‘mild’ illness, used various kinds of evidence and advocacy to demonstrate a longer, more complex course of illness than laid out in initial reports from Wuhan. Long Covid has a strong claim to be the first illness created through patients finding one another on Twitter: it moved from patients, through various media, to formal clinical and policy channels in just a few months. This initial mapping of Long Covid – by two patients with this illness – focuses on actors in the UK and USA and demonstrates how patients marshalled epistemic authority. Patient knowledge needs to be incorporated into how COVID-19 is conceptualised, researched, and treated.
Subfields: Clinical Psychology, Critical Care and Intensive Care Medicine, Neurology
View Paper: https://www.semanticscholar.org/paper/afa5bfc4e4bfb49d7813e8de6c0df1f17f6eb74a
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Citations in the corpus
- Characterizing long COVID in an international cohort: 7 months of symptoms and their impact (2020, background): “Early in the course of the pandemic, patients identified this trend, referring to themselves as “Long-Haulers” and the prolonged illness as “Long COVID” [7].”
- Characterising long COVID: a living systematic review (2021, background): “No major difference was found in the sensitivity analyses (online supplemental files 11 and 12).”
- Long COVID or post-COVID-19 syndrome: putative pathophysiology, risk factors, and treatments (2021, background): “The term long COVID (or post-COVID syndrome or long-haul COVID-19) started gaining recognition in the scientific and medical communities [4].”