Mapping the impact of patient and public involvement on health and social care research: a systematic review

By J. Brett, S. Staniszewska, C. Mockford, S. Herron-Marx, John Hughes, C. Tysall, R. Suleman. Health Expectations, 2014

1,395 citations recorded by the source corpus.

How researchers see this paper

The researchers whose trusted networks rank it highest, strongest advocate first. Every researcher gets a different order.

A Systematic Review of the Impact of Patient and Public Involvement on Service Users, Researchers and Communities (2014, positive): “ceptualisation, measurement, impact and outcomes of patient and public involvement (PIRICOM) study focused specifically on the impacts of PPI on research and identified a wide range of beneficial and challenging impacts [8].”
Research co-design in health: a rapid overview of reviews (2020, methodology): “terms ‘involvement’ [8, 12, 31, 32] or ‘engagement’ [5] to describe cases where research end-users contributed to”
Making the future together: Shaping autism research through meaningful participation (2018, neutral): “In so doing, we should draw on the experiences of pioneers within (Frauenberger et al., 2013; Gillespie-Lynch et al., 2017; Mason et al., submitted; McConachie et al., 2018; Nicolaidis et al., 2013; Parsons et al., 2013) and outside (Brett et al., 2014; Rose, 2003) autism research.”
From tokenism to empowerment: progressing patient and public involvement in healthcare improvement (2016, background): “19 22 23 The involvement process has also been seen as an important way in healthcare systems of enhancing democratic principles and accountability.”